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Rwanda's 100 days of
genocide
By the time of the
genocide in 1994,
the media in the
West often portrayed
Rwanda as a country
of warring tribes.
But this was not
always the case.
Ethnic polarisation
is a quite a recent
development. For
many centuries the
Hutu, Tutsi and the
smaller Twa minority
lived in relative
harmony. The Hutu
were largely
agricultural people,
the Tutsi were
predominantly cattle
herders. Over the
centuries much
intermarriage
occurred and ethnic
groups were not as
distinct as anywhere
else [extract from
“A Time to
Remember”]
The two ethnic
groups were even
quite similar,
speaking the same
language, inhabiting
the same areas and
following the same
traditions.
But when the Belgian
colonists arrived in
1916, they saw the
two groups as two
distinct entities.
Because the Tutsi
were generally
taller and thinner
than the Hutu’s, the
belief was that they
were more like the
Europeans and
therefore should be
favoured. With this
in mind, the
colonists formalised
a division between
the two races,
producing identity
cards classifying
people according to
their ethnicity.
As the ruling class,
the Tutsis enjoyed
better jobs and
educational
opportunities than
their neighbours. By
1957 most of the
school places, 95%
of the country’s
civil service and
nearly all the
chiefs and
sub-chiefs were
Tutsi.
The end of World War
Two marked a shift
in favouritism to
benefit the majority
Hutu over the Tutsi.
Unfortunately the
damage had been
done. In the lead up
to Rwanda’s
independence, the
rift that had been
created between the
two groups was
irreversible.
Resentment,
suspicion and
hostility boiled
over into violence
on several occasions
in the 1960’s and
70’s, leading into
an all out riot in
the 90’s.
In April 1994, in
the power vacuum
following the death
of Rwandan
President, Juvenal
Habyirimana, Hutu
militia groups and
the Rwandan army
unleashed a
carefully
pre-planned genocide
to finally rid the
country of Tutsi
civilians and Hutu
moderates once and
for all.
Sources: BBC
World
The Aegis Institute
Jim Wackett
Rwanda:
"Marked
for Death"
Rape
survivors living
with HIV/AIDS in
Rwanda
"During the
genocide, the
militia at the
barriers said they
would protect me,
but instead they
kept me and raped me
in their homes. One
militia member would
keep me for two or
three days, and then
another would choose
me. If killers came
to their house, the
militia member would
say I was his
sister. I had to
stay with these men
because I would have
been killed
otherwise. The
conditions were very
favourable for HIV
transmission. I
managed to flee
Kigali, and when I
returned, I learned
that my husband had
been killed. My
husband was a Hutu,
and he had gotten a
Hutu identity card
for me because he
hoped it would
protect me. Because
I had this card, I
was denied
assistance from
IBUKA [support
organization for
genocide survivors]
for my children or
from the government
fund for genocide
survivors".
-Francine,
HIV-positive, Kigali
"In 1998, I was
leaving for boarding
school in Gisenyi.
Just before reaching
the town...we were
ambushed by the
abacengezi
[insurgents]...The
taxi rolled over,
and as the
passengers fled the
vehicle, the
abacengezi chopped
them with machetes.
I managed to hide
under corpses but
heard the rebels
saying they would
get fuel to burn the
bodies. I cried out,
and they stabbed
me...and carried me
into the
forest...There were
other women and
girls there too,
from different parts
of the country who
were kidnapped under
similar
circumstances. ...
Members of the
militia came each
night to rape me,
until one night a
militia member
announced that I was
his, that he was my
"husband". I only
thought of escaping
to my family...We
had to flee
constantly because
they were being
chased by the
Rwandese army.
During a major
offensive of the
government military
in Gishwati forest,
I managed to flee
when everyone else
was dispersed...then
returned home...A
few years later, an
RPF soldier came to
my house and wanted
to have sex with me.
I tried to convince
him that I was
HIV-positive and
couldn’t have sex.
It was like a rape.
Because he was a
soldier, I felt I
couldn’t shout. He
wanted to marry me,
and since he was a
soldier I felt I had
no choice. I made
him get tested the
day after the rape,
and it turned out he
was already
HIV-positive. I
married him against
my will. My hopes
have been dashed. I
have finished my
studies. I am very
upset because my
family pinned all
their hopes on me,
sacrificed to have
me educated, but I
fear I will soon be
dead and my family
members will not
benefit from their
sacrifice".
Angèle, HIV
positive, Kigali-Ngali
I.
Introduction
In April 1994,
Rwanda suffered one
hundred days of
violence, targeted
at the Tutsi and
moderate Hutu
population. Ten
years later, the
consequences of the
violence have not
been dealt with
adequately, neither
by the international
community nor by the
Rwandan government.
Survivors of
violence still cry
out for medical
care; survivors and
families of victims
clamour for justice
that is slow in
coming. Women
continue to die from
diseases related to
HIV/AIDS, which some
of them contracted
as a result of rape
during the 1994
genocide and armed
conflict. Survivors
of rape and their
families face human
rights violations
that themselves lead
to further and
overlapping
violations:
survivors of sexual
violence may have
contracted HIV/AIDS,
as a result of which
they and their
families often face
stigma, which can in
turn lead to loss of
employment,
difficulty in
asserting property
rights, and a loss
of civil and
political rights.
Although not all
cases of HIV/AIDS
among rape survivors
can be traced to the
sexual violence they
survived, the mass
rape during 1994
contributed
significantly to the
spread of the virus
in Rwanda,
particularly as
rates of HIV
transmission during
sexual violence are
believed to be high.
The HIV/AIDS
pandemic in Africa
grows worse daily,
though the
international
response has been
lukewarm. It is in
this context, ten
years after the
start of the Rwandan
genocide and war and
as part of its Stop
Violence Against
Women campaign, that
Amnesty
International is
making an appeal to
the Rwandan
government and
international
community to expand
access to healthcare
and justice for
survivors of rape
and their families.
Violence against
women and girls
constituted a
well-documented and
tragically
widespread component
of the genocide and
war strategy in
1994. In the 1998
Akayesu judgment at
the UN International
Criminal Tribunal
for Rwanda (ICTR),
prosecutors were
successfully able to
demonstrate that
genocidal intent
spurred extensive
sexual violence
during the genocide,
as determined from
individual
testimonies
regarding the stated
intent of the
perpetrators and the
investigation of
sexual violence
occurring in a
widespread fashion
across the country.
During the genocide,
women and
girls-predominantly
but not exclusively
Tutsi-survived or
succumbed to
extraordinary acts
of violence. Many
were raped at
barriers erected by
the interahamwe
youth militia
and/or held as
sexual captives in
exchange for
temporary protection
from interahamwe
militia and the
military. Their
bodies and spirits
were mutilated,
humiliated and
scarred.
The Rwandan
Patriotic Army (RPA)
was likewise
responsible for
sexual and other
violence during its
military advance,
sometimes in
reprisal against the
Hutu population. The
extent and nature of
these crimes is less
well-known, and very
few of the suspected
perpetrators have
been brought to
justice. While the
impact of sexual
violence perpetrated
during the genocide
and war constitutes
the focus of this
report, it is
important to note
that the phenomenon
of rape neither
began nor ended in
1994. Sexual
violence and forced
marriage continue to
be perpetrated by
members of the
current Rwandese
military (Rwandan
Defence Forces or
RDF), security
forces and unpaid
militias. These
assaults are
sometimes reported
but are again seldom
prosecuted.
Gender-based
violence has been a
persistent feature
of the human rights
violations committed
by Rwandese security
forces in the
Democratic Republic
of Congo (DRC)/Zaire
and in the post-war
insurgencies in
Rwanda.
For some women, the
violence began
during the 1990
conflict, or during
spates of ethnic
killing decades
earlier.(1) Though
no baseline studies
exist from before
the genocide and
war, anecdotal
evidence suggests
that domestic and
sexual violence have
increased
significantly since
then.(2) The
economic and social
vulnerability of
women and girls,
among other factors,
has in the past and
continues today to
leave them exposed
to sexual violence.
The availability of
small arms in the
region increases the
capacity of
perpetrators to
commit acts of
sexual violence and
other crimes. The
overwhelming
impunity of members
of the armed forces,
Local Defence Forces
(an armed but unpaid
local militia) and
others in position
of authority
likewise hampers
efforts to combat
the problem.
For some of these
women, the killing
has yet to claim its
last victims. AVEGA,
an association for
genocide widows,
carried out a study
in 2000 of 1125
women who survived
rape during the
genocide and found
that 66.7% had
HIV.(3) AVEGA also
estimates that 80.9%
of survivors of
violence during the
genocide remained
traumatized in
1999.(4) According
to a UN report, at
least 250,000 women
were raped during
the genocide, a
large number of whom
were subsequently
executed. Of the
survivors, 70% are
estimated to have
been infected with
HIV. AVEGA estimates
that 200 of its
members have died of
AIDS since 2001,
when the
organization set up
an HIV/AIDS support
centre. AVEGA had
618 members living
with HIV in January
2004, though this
number represents
only those members
who had been tested
for HIV in three of
the 12 provinces in
the country.(5) As
of March 2004, only
28 of these women
were receiving
life-prolonging
anti-retroviral (ARV)
treatment (22 from
AVEGA, 6 from other
sources), though the
number is expected
to increase this
year. Other
HIV-positive AVEGA
members benefit from
free antibiotics to
control
opportunistic
infections.
Associations of
people living with
HIV/AIDS (PLWHA) in
Rwanda routinely
bury members,
casualties of the
long wait for the
government and
international
community to respond
to their needs. In
some cases,
survivors of rape
have passed the
infection on to
their partners or
children.
Policy advisors in
Rwanda told Amnesty
International
delegates that the
number of patients
clinically in need
of life-prolonging
anti-retroviral (ARV)
therapy is estimated
at between 50,000
and 100,000. As of
January 2004, only
approximately 2,000
Rwandese were being
treated with ARVs.
Approximately 50,000
Rwandese per year
die of AIDS(6). By
the end of 2004, an
estimated 3,000 to
5,000 Rwandese will
receive ARVs.
Of course, the state
of health of a
person living with
HIV/AIDS depends on
far more than access
to medication:
proper nutrition,
psychological
well-being, decent
housing and personal
and financial
security can all
have a dramatic
impact on the
physical health of
such an individual.
Average per capita
annual GDP is
$US252, and,
according to
Rwandese government
documents, 60% of
Rwandese are
estimated to live
below the poverty
line.(7) More than
half of the
population lacks
access to clean
water, and 40% of
Rwandese are
undernourished.(8)
Only an estimated
28% of Rwandese
households affected
by HIV/AIDS are able
to afford even basic
health care; many
families borrow
money, sell assets,
including land, or
decide to forego
healthcare. Under
these conditions, it
is clear that a
holistic approach is
needed if ARV
treatment is to be
effective, including
improving living
conditions of PLWHA
and reducing the
burden on their
families or those
caring for them.
II. Context:
discrimination
against women
In recent years, the
status of women in
Rwanda and the
importance of
women’s rights have
been significantly
elevated. Rwanda now
boasts the highest
percentage of woman
parliamentarians in
the world (48.8%),
and legislation on
land rights,
marriage, child rape
and violence against
women has been
amended to
contribute to the
protection of
women’s rights.
Nevertheless,
customary law, which
often overrides
written law, remains
biased against women
with regard to
inheritance and land
ownership, thus
often placing the
woman in a position
of dependency. Many
customary practices
reinforce the
patriarchal system
in Rwanda. The level
of education of
women, and hence
their access to
information and
means of
empowerment, has
generally been much
lower than that of
men, though this
imbalance is
changing.
II.
1. Discrimination
and sexual violence
The low status of
women and difficulty
in seeking redress
leave many women and
girls vulnerable to
sexual violence. In
some areas,
relatives of a male
who has died, been
imprisoned or left
the country will
expect to be able to
have sexual
relations with his
female partner.
Domestic workers are
particularly
vulnerable to rape,
and often fear
reporting sexual
assault or
harassment for fear
of losing their jobs
and disappointing
their families.
Other women find
themselves
vulnerable to
soldiers, Local
Defence Forces,
neighbours and male
relatives who demand
sex or wish to
exchange food or
other goods for sex.
Following rape
survivors rarely
bring their cases to
the police, but
rather families will
find a financial
solution to
compensate for the
abuse; the survivor
may even be forced
to marry the
perpetrator in order
to "normalize"
relations between
the families
concerned.
Poverty and insecure
living
circumstances,
including
unprotected housing
that fails to
protect women from
unwanted sexual
advances from
neighbours and
passers-by, may
ultimately result in
unwanted pregnancies
and sexually
transmitted
diseases. Children
of both sexes have
also been frequent
victims of rape in
recent years, a
phenomenon fuelled
by traditional
healers’
exhortations that
having sex with a
virgin will make the
perpetrator wealthy
or cure him of
HIV/AIDS.
II.2.
Stigmatisation of
survivors of sexual
violence
If the status of the
average married
Rwandese woman is
often low, it is
still higher than
that of a widow or a
rape survivor.
Demeaning attitudes
exhibited toward
women who have been
raped are not
exclusive to men:
several women told
Amnesty
International how
they had been
humiliated and
tormented by female
community members or
even their own
daughters following
their rape.
The children of the
genocide themselves
can face severe
discrimination,
belittled as
offspring of
interahamwe, and
are sometimes called
the "enfants
mauvais souvenir"
or children of
bad memories, even
by their mothers.
The mothers may also
be humiliated and
marginalized by the
community as a
result. Other women
or girls are driven
to infanticide; a
majority of women
and girls with whom
Amnesty
International
delegates spoke in
March 2003 in the
former women’s
prison in Byumba
were serving long
prison sentences,
including life
imprisonment, for
abortion or
infanticide, though
not necessarily from
1994.
II.3. Poverty,
discrimination and
loss of sexual
autonomy
Discrimination
against women in
Rwanda extends to
sexual health and
family planning
choices. Like women
in many countries,
women across Rwanda
find it difficult to
control their
reproductive health
and their sexuality,
often because of
extreme poverty,
their economic
dependence or social
inferiority to their
husbands and their
lack of access to
health care and
contraception.
Domestic violence is
believed to be
rampant, with a high
percentage of women
suffering routine
battery and
assaults, though the
figures of a recent
baseline survey
carried out by
International Rescue
Committee have not
yet been published.
Domestic violence,
or even the threat
of violence,
decreases a woman’s
ability to negotiate
her sexual autonomy,
making her more
vulnerable to HIV
infection.
Women’s diminished
access to radios,
community meetings
and written
information sources
lessens their access
to information and
education about
sexual health and
contraception.(9)
Abortion remains
illegal in Rwanda
and, for many women
and medical
personnel,
contravenes
religious beliefs.
Women and girls must
therefore either
carry an unwanted
pregnancy to term or
attempt to end the
pregnancy illegally,
sometimes with
serious, sometimes
fatal, health
consequences.
III.
Rape as a tool of
genocide
"Like so many
others, my husband
was killed during
the war, and I was
raped by two
assailants. Most of
my family died".
Jeanne Musabe, age
50, Nyamirambo
(Kigali)
In a
well-established
pattern of
systematized
brutality and
humiliation,
Rwandese women and
girls suffered a
range of
gender-specific
violence such as
rape, various forms
of genital
mutilation, hacking
off of breasts,
sexual slavery,
forced abortion and
forced marriage. The
United Nations
Special Rapporteur
of the Commission on
Human Rights, René
Degni-Segui,
estimated in 1996
that between 250,000
and 500,000 rapes
were committed
during the genocide.
Women and girls were
systematically
subjected to rape,
including gang
rape(10), inflicted
even on pregnant
women or women who
had just given
birth. Some were
killed or seriously
injured by having
arrows, spears or
other objects pushed
into their vaginas
or by being shot in
the genitals. Tutsi
women were given as
rewards to men who
"excelled" at
killing Tutsi, and
many were forced to
submit to sex in
exchange for
temporary security,
particularly at
roadblocks.
Degradation was
integral to the
physical violence,
with some women
being made to parade
naked or perform
various humiliating
acts at the bidding
of soldiers and
militia. As reported
in human rights
literature and to
Amnesty
International
delegates, the
genitalia of Tutsi
women were sometimes
cut off and
displayed, and some
women reported
seeing members of
the militia or
military rape
corpses. Assailants
sometimes mutilated
or chopped off body
parts deemed
characteristic of
Tutsi women, such as
thin fingers or long
noses.
While the violence
was directed
primarily at Tutsi
women during the
genocide, Hutu wives
of Tutsi men
sometimes suffered
particular
brutality. Moderate
Hutu women, those
who attempted to
protect Tutsi, or
Hutu women and girls
who were thought to
look like Tutsis
were also raped and
brutalized. Some
perpetrators took
advantage of the
lawless atmosphere
to rape Hutu women
and girls. Both Hutu
and Tutsi women were
vulnerable to rape
and other forms of
aggression as they
attempted to flee to
safety or as they
sought shelter in
refugee camps. Hutu
women were also
raped during and
after the Rwanda
Patriotic Army (RPA)
advance in the
country, sometimes
as a reprisal action
directed against the
Hutu population.
Very few
perpetrators of
these rapes have
been prosecuted.
Women and men alike
were brutalized by
torture, murder,
grave injury and
severe psychological
trauma in their
homes, in schools,
hospitals, fields
and churches.
Survivors reported
to Amnesty
International that
family members had
been asked to kill
their own relatives
and were themselves
killed, if they
refused or even if
they complied.
Injured persons were
often left to die,
sometimes thrown
into latrines. Some
survivors felt
particularly
aggrieved that they
were forced to flout
custom by being
prevented from
burying the dead,
and instead made to
let their bodies rot
in the street.
IV.
Legacies of the
conflict
"During the war, the
militia came and
would look for young
men to kill and for
girls to have sex.
For one week, I had
sex with a different
one each night, and
they threatened to
kill me...Now I am
the head of the
household.
Fortunately, my
younger siblings
have gotten
assistance for their
school fees, and I
have been taking
anti-retrovirals for
nine months. I want
to get married and
find someone who
will help take care
of my brother and
sister. Sometimes
people ask to marry
me, but I have to
say no because I
don’t want to infect
my potential
husband. I feel
different from other
young people, who
have their whole
lives ahead of
them".
Clémentine,
Kigali-Ngali, age
30.
IV.1.
Psychological
trauma, guilt and
ostracization
During the genocide
and war, women and
girls suffered or
witnessed acts of
indescribable
brutality, including
the murder of family
members and loved
ones. Husbands,
brothers and
children were
anguished by the
physical and
psychological
assaults on their
female family
members. The
violence has left
many Rwandese
profoundly
traumatized, far
beyond the capacity
of support
organizations to
assist meaningfully
in most cases. In a
1999 study, 80.9% of
people surveyed
reported symptoms of
trauma.(11)
Women and girls who
suffered sexual
violence during the
genocide and war
sometimes faced
severe
stigmatisation and
marginalization if
and when their
assault became
known. Many have
kept silent about
the horrors they had
endured as a result.
Some women said
people in their
communities who knew
they had been raped
assumed they had a
sexually transmitted
disease,
particularly HIV.
Several women said
candidly that they
combated feelings of
guilt for having
survived and having
been raped, and said
that community
members told them
that, if they had
survived, they must
have collaborated
with perpetrators of
the genocide. Some
women had been
affected by grave
medical problems
such as fistula that
contributed further
to their
ostracization.(12)
Some were unable to
marry or were
abandoned by their
husbands. Many of
the women
interviewed by
Amnesty
International said
they had not sought
medical help
immediately, even if
it was available,
because they wished
to conceal the fact
that they had been
raped. Ten years
later, the greatest
medical issues many
women face,
particularly women
affected by
HIV/AIDS, are
psychological
problems. One woman,
who had not only
been raped but lost
two children and her
husband in 1994,
said, "I have
gone to the hospital
four times for
psychiatric
treatments... It is
still very bad for
me, and it is hard
to find someone to
talk to."
IV.2. Differential
impact on women and
girls
The after-effects of
the violence have
often impacted women
with particular
severity. Following
the genocide and
war, women
constituted a
majority of the
population and were
left with new
burdens of
generating income,
caring for the
injured, sick and
disabled and taking
in orphans. Women
were left to cope
with these difficult
circumstances while
grappling with their
own illnesses,
injuries, grief and
trauma.
The genocide, war
and ensuing
instability in the
region have created
a complex series of
ramifications for
women and their
families, often
differentially
affecting women.
Women or girls may
have been left as
the only breadwinner
in their families or
pressured into
"opportune"
marriages. Some
families lost their
land, housing and
assets during the
genocide and war,
thereby augmenting
the strains on
family resources and
eroding social
cohesion. Girls may
have been left
orphaned and are
more likely to have
been deprived of
education, as they
are often expected
to take on childcare
roles or find work
as domestic
servants. Young
women may be forced
to sell sex to
provide for
themselves and their
siblings, sometimes
being forced to live
in the street.
Survivors of rape
may have been
rejected by their
partners, families
or communities.
"My husband was
imprisoned one week
after the war,
though nobody has
come to accuse
him...I suspect my
brother-in-law of
infecting me...
After my husband was
imprisoned, his
brother started
coming around and
insisted that I had
to have sex with him
in order to confirm
that I was still
part of the family.
Eventually I had to
give in. ... I worry
because I had
extramarital
relations and about
what will happen
when my husband
returns from prison.
I will be kicked out
and my children will
be maltreated by the
new wife. I refuse
to keep silent and
contaminate
him...All of this
happened only
because of the war.
My husband was my
confidante-he
wouldn’t be in jail,
and I wouldn’t be
infected, if it
weren’t for the
war".
Florence,
Kigali-Ngali
Providers in the
family may have been
imprisoned, gone
into exile or sent
to fight, again
leaving women (or
indeed children)
with the charge of
providing
food-including
having to transport
it to the prison-and
becoming sole
care-takers of the
family. Malnutrition
and other health
problems are often
the natural
consequence of these
stresses for many
women and children.
Women have been left
to care for
countless orphans,
even as poverty in
the country worsens,
and some women care
for children born to
them as a result of
rape. Family members
may have been left
with lasting health
consequences or
disability as a
result of injuries
sustained in 1994
and often rely on
women and girls to
tend to them.
IV.3. Land and
inheritance issues
Some widows lost
their land when it
was reclaimed by
their husband’s
family or by
Rwandese who
returned in the
months and years
following the RPA
victory, or during
the "villagization"
process that
sometimes forcibly
attempted to group
dispersed rural
inhabitants into
villages. During a
decade of refugee
returns,
displacement,
"villagization"
programs and
seizures of land by
powerful
individuals, land
has changed hands
frequently; women’s
claim to land, even
if codified in law,
has been
particularly
difficult to
enforce.
IV.4. Legacies of
the genocide and war
that contribute to
HIV transmission
Some girls and young
women said they had
been turned out of
their homes when
family incomes were
deemed inadequate to
provide for
everyone. Widows and
orphan girls were
rendered
particularly
vulnerable to forced
marriage, rape by
neighbours or
strangers, or sexual
abuse by employers,
particularly if they
worked as domestic
servants. Sex work
seemed the only
option for destitute
and traumatized
women and girls,
some of whom had
survived sexual
violence. Economic
problems force women
into staying in
abusive
relationships or
submitting to
unwelcome sexual
advances. Meanwhile
the generalized
trauma undoubtedly
continues to
exacerbate sexual
and domestic
violence, women’s
groups and medical
professionals
speculated to
Amnesty
International
delegates. According
to Rwandese
government figures,
an estimated 80% of
sex workers are
infected with
HIV.(13)
While HIV
transmission is
obviously not the
only problem facing
women and girls, the
after-effects of the
genocide, war and
ongoing regional
conflict on women
and girls contribute
significantly to
their risk of
exposure to the
virus. They may
engage in "survival
sex"-that is, sexual
encounters entered
into in exchange for
food, shelter,
school fees or other
goods.(14) Up to
400,000 children are
missing one or both
parents, whether to
violence, AIDS or
other causes. These
children may be
forced to wander the
streets as vendors
or may simply find
themselves homeless,
where they are
vulnerable to rape
or may engage in
survival sex. Some
women and girls
engaged in survival
sex or prostitution
are themselves
survivors of sexual
violence and may
suffer from serious
trauma and
depression.
"I married in
1995. I heard that
my husband might
have HIV, but my
father was dead and
my mother was in
prison. I had five
brothers and sisters
to take care of, and
I had to get married
so they would have
money for school
fees".
HIV-positive woman,
Kigali
"After the war,
we saw that our
family was
decimated...My
little sister for
whom I care is a
pseudo-prostitute
because she has no
money. She says that
she will continue
this lifestyle even
if she becomes
HIV-positive. She
says she looks at my
health degrading and
insists that wants
to taste life before
she dies".
HIV-positive woman
from Kigali-Ngali
"Some of the
street children are
orphans from
1994...The Local
Defence Forces tell
[street] children
that if they have
sex with them, they
will be protected.
We hear of many
cases of girls being
raped...they call
sex for protection
umuswati, which is
Kinyarwanda slang
for the female
genital organ".
Joseph, from support
organization for
Rwandese street
children
V.
International legal
framework
International human
rights and
humanitarian law
provide
comprehensive
guarantees of the
rights of women and
girls to protection
from sexual violence
and abuse.
International law
requires states to
address persistent
violations of human
rights and take
measures to prevent
their occurrence.
With respect to
violations of bodily
integrity, states
have a duty to
prosecute abuse,
whether an agent of
the state or a
private citizen
commits the
violation. For
example, Article 2
of the International
Covenant on Civil
and Political Rights
(ICCPR) to which
Rwanda is a party
requires governments
to provide an
effective remedy for
abuses and to ensure
the rights to life
and security of the
person of all
individuals in their
jurisdiction,
without distinction
of any kind
including sex. When
states routinely
fail to respond to
evidence of sexual
violence and abuse
of women and girls,
they send the
message that such
attacks can be
committed with
impunity. In so
doing, states fail
to take the minimum
steps necessary to
protect the right of
women and girls to
physical integrity.
Perpetrators of
sexual violence,
including rape, can
be held accountable
under international
law for acts of
genocide, war crimes
or crimes against
humanity. Rape and
other forms of
sexual violence are
explicitly condemned
as war crimes, both
in internal and
international
conflicts. Common
article 3 of the
1949 Geneva
Convention, to which
Rwanda is a state
party, is applicable
to armed conflicts
not of an
international
character and is
binding on all
parties to a
conflict. It
prohibits "[violence
to life and person,
in particular murder
of all kinds,
mutilation, cruel
treatment and
torture" and
"outrages upon
personal dignity, in
particular,
humiliating and
degrading
treatment". The
"fundamental
guarantees" of
Protocol II
Additional to the
Geneva Conventions,
also applicable to
non-international
armed conflicts,
protect civilians
and requires that
"they shall in all
circumstances be
treated humanely,
without any adverse
distinction. It is
prohibited to order
that there shall be
no survivors."
Protocol II
prohibits "violence
to the life, health
and physical or
mental well-being of
persons, in
particular murder as
well as cruel
treatment such as
torture, mutilation
or any form of
corporal
punishment",
"outrages upon
personal dignity, in
particular
humiliating and
degrading treatment,
rape, enforced
prostitution and any
form of indecent
assault" and
"slavery and the
slave trade in all
their forms". Rwanda
acceded to Protocol
II in 1984.
The widespread or
systematic
commission of acts
of sexual violence
against a civilian
population may be
prosecuted as crimes
against humanity,
regardless of
whether they took
place in the context
of war or peace. As
recognized in the
Rome Statute of the
International
Criminal Court, rape
and other forms of
sexual violence of
comparable gravity
may be considered
crimes against
humanity when they
are committed as
part of a widespread
or systematic attack
directed against any
civilian population,
with knowledge of
the attack. The Rome
Statute includes in
its definition of
rape, the invasion
of "the body of a
person by conduct
resulting in
penetration, however
slight, of any part
of the body of the
victim or of the
perpetrator with a
sexual organ, or of
the anal or genital
opening of the
victim with any
object or any other
part of the body."
The 1948 Convention
on the Prevention
and Punishment of
the Crime of
Genocide ("the
Genocide
Convention"), to
which Rwanda is a
state party, defines
genocides as "any of
the following acts
committed with the
intent to destroy,
in whole or in part,
a national, ethnic,
racial or religious
group, as such:
(a) Killing members
of the group;
(b) Causing serious
bodily or mental
harm to members of
the group;
(c) Deliberately
inflicting on the
group conditions of
life calculated to
bring about its
physical destruction
in whole or in part;
(d) Imposing
measures intended to
prevent births
within the group;
(e) Forcibly
transferring
children of the
group to another
group."
Sexual violence
includes rape and
attempted rape, and
such acts as forcing
a person to strip
naked in public,
forcing two victims
to perform sexual
acts on one another
or harm one another
in a sexual manner,
mutilating a
person's genitals or
a woman's breasts,
and sexual slavery.
The appeals
chamber judgment of
the UN International
Criminal Tribunal
for the former
Yugoslavia (ICTY) in
the 2002 Foca
case define rape as
"[t]he sexual
penetration, however
slight: (a) of the
vagina or anus of
the victim by the
penis of the
perpetrator or any
other object used by
the perpetrator; or
(b) [of] the mouth
of the victim by the
penis of the
perpetrator; where
such sexual
penetration occurs
without the consent
of the victim.
Consent for this
purpose must be
consent given
voluntarily, as a
result of the
victim's free will,
assessed in the
context of the
surrounding
circumstances. The
mens rea is
the intention to
effect this sexual
penetration, and the
knowledge that it
occurs without the
consent of the
victim.(15)
The landmark 1998
Akayesu judgment at
the ICTR articulates
a broad definition
of rape, including
more than physical
penetration or even
sexual contact:
"a physical
invasion of a sexual
nature, committed on
a person under
circumstances which
are coercive. The
Tribunal considers
sexual violence,
which includes rape,
as any act of a
sexual nature that
is committed on a
person under
circumstances that
are coercive. Sexual
violence is not
limited to physical
invasion of the
human body and may
include acts which
do not involve
penetration or even
physical contact...
The Tribunal notes
in this context that
coercive
circumstances need
not be evidenced by
a show of physical
force. Threats,
intimidation,
extortion and other
forms of duress
which prey on fear
or desperation may
constitute coercion,
and coercion may be
inherent in certain
circumstances, such
as armed conflict or
the military
presence of
interahamwe
among refugee Tutsi
women at the bureau
communal."(16) The
Akayesu judgment for
the first time noted
that rape and sexual
violence could be
prosecuted as
constitutive
elements of
genocide. The
Akayesu decision
further represents
an important
evolution from
previously existing
definitions of rape,
including Article 27
of the Fourth Geneva
Convention, which
regards rape as an
attack against a
woman’s honour or
decency, rather than
as a physical
assault. The
language of the
Akayesu decision
clearly describes
rape as an assault
on physical
integrity, thus
elevating rape to
the status of other
grave crimes, rather
than reinforcing the
pre-existing notion
that it was a lesser
or private crime.
The first
convictions by the
ICTY for rape as a
crime against
humanity came in the
Kunarac, Kovac, and
Vukovic decision of
22 February 2001,
when the court found
that the crimes of
the accused
comprised part of a
systematic attack
against Muslim
civilians, intended
to drive the Muslims
out of the region.
The defendants were
also convicted of
enslavement as a
crime against
humanity, thus
setting a legal
standard for sexual
enslavement as a
crime against
humanity.
The Akayesu
definition of rape
is reinforced by the
Kunarac decision,
which rejects the
notion that the
victim need show
resistance to force.
Rather, under the
ruling, force or
threat of force
provide sufficiently
clear evidence of
non-consent;
coercive
circumstances-without
necessitating
physical force-were
deemed sufficient to
determine the
absence of consent.
Rwanda ratified the
Convention on the
Elimination of All
Forms of
Discrimination
against Women
(CEDAW) in 1981, but
has not signed its
Optional Protocol.
CEDAW recognizes
that many women’s
rights abuses
emanate from society
and culture, and
compels governments
to take appropriate
measures to correct
these abuses. CEDAW
requires governments
to "modify the
social and cultural
patterns of conduct
of men and women,
with a view to
achieving the
elimination of
prejudices and
customary and all
other practices
which are based on
the idea of the
inferiority or the
superiority of
either of the sexes
or on stereotyped
roles for men and
women".(17) The
Committee on the
Elimination of
Discrimination
against Women, which
monitors application
of CEDAW, issued in
1992 General
Recommendation 19,
which specifies that
gender-based
violence is a form
of discrimination
that gravely affects
women's enjoyment of
their human rights:
"[g]ender-based
violence, which
impairs or nullifies
the enjoyment by
women of human
rights and
fundamental freedoms
under general
international law or
under human rights
conventions, is
discrimination
within the meaning
of article 1 of the
Convention". The
Committee includes
as examples of
violence rape and
other forms of
sexual assault the
denial of
reproductive health
services and
battering. According
to Article 2 of
CEDAW, states must
"pursue by all
appropriate means
and without delay a
policy of
eliminating
discrimination
against women" by
taking "all
appropriate measures
to eliminate
discrimination
against women by any
person, organization
or enterprise". This
obligation extends
to violence against
women in the context
of armed conflict.
In reference to the
impact of violence
against women, the
Committee states
that "wars, armed
conflicts and the
occupation of
territories often
lead to increased
prostitution,
trafficking in women
and sexual assault
of women, which
requires specific
protective and
punitive measures".
The Recommendation
19 comment on
Article 6 of CEDAW
contains language
that is especially
relevant for women
and girls left
destitute following
the genocide and
war: "Poverty and
unemployment force
many women,
including young
girls, into
prostitution. Sex
workers are
especially
vulnerable to
violence because
their status, which
may be unlawful,
tends to marginalize
them. They need the
equal protection of
laws against rape
and other forms of
violence." The
Committee notes, in
its comment on
Articles 16 and 5,
that the "lack of
economic
independence forces
many women to stay
in violent
relationships. The
abrogation of their
family
responsibilities by
men can be a form of
violence, and
coercion. These
forms of violence
put women's health
at risk and impair
their ability to
participate in
family life and
public life on a
basis of equality."
This comment is of
particular
importance for women
with grave illnesses
such a HIV/AIDS who
may be neglected or
abandoned by their
husbands on the
basis of their
infection, their
inability or
unwillingness to
reproduce or their
incapacity to work.
In General
Recommendation 24,
the Committee
affirms that access
to health care,
including
reproductive health
is a basic right
under the
Convention.
Furthermore, it
requires states to
eliminate
discrimination
against women in
their access to
healthcare services
throughout the life
cycle, particularly
in the areas of
family planning,
pregnancy,
confinement and
during the
post-natal period.
Article 12 of CEDAW
calls on states to
provide "equal
access to health
care
services...including
family planning".
The Protocol to the
African Charter on
Human and Peoples’
Rights on the Rights
of Women in Africa,
which Rwanda signed
on 19 December 2003,
requires governments
to eliminate
violence against
women as well as
gender
discrimination. The
Protocol is
far-reaching and
innovative in its
definitions and
substantive
provisions. Its
provisions include
equal access to
justice and equal
protection before
the law; the right
to adequate food and
drinking water; the
right to equal
access to education
and other economic,
social and cultural
rights. Article 14
concerns women's
reproductive rights
and health. It
includes the right
to contraception and
"the right to self
protection and to be
protected against
sexually transmitted
infections,
including HIV/AIDS"
and "the right to be
informed on one's
health status and on
the health status of
one's partner,
particularly if
affected with
sexually transmitted
infections,
including HIV/AIDS,
in accordance with
internationally
recognised standards
and best practices."
Article 14.2 also
requires that
"States Parties
shall take all
appropriate measures
to:
a) provide adequate,
affordable and
accessible health
services, including
information,
education and
communication
programmes to women
especially those in
rural areas;
b) establish and
strengthen existing
pre-natal, delivery
and post-natal
health and
nutritional services
for women during
pregnancy and while
they are
breast-feeding;
c) protect the
reproductive rights
of women by
authorising medical
abortion in cases of
sexual assault,
rape, incest, and
where the continued
pregnancy endangers
the mental and
physical health of
the mother or the
life of the mother
or the foetus."
For the first time
in international
law, the Protocol
guarantees the right
to abortion in case,
inter alia,
of sexual assault,
rape and when the
pregnancy endangers
the mental or
physical health of
the mother. The
Protocol also
guarantees the
rights of widows,
including the right
to be free from
inhuman, humiliating
or degrading
treatment, to
automatically become
the guardian of her
children after the
death of her
husband, and to have
an equitable share
in the inheritance.
States are directed
to reduce their
military
expenditures
"significantly" and
to use the funds
instead for social
development,
especially with
regards to women.
Under the
International
Covenant on Civil
and Political Rights
(ICCPR), to which
Rwanda is a state
party, states
parties are required
to refrain from
human rights
violations against
women and to protect
women from abuses by
other actors,
whether in peacetime
or war. The Human
Rights Committee has
specifically
mentioned the risk
posed to women in
times of conflict
and informed states
that they must
report to the
Committee "all the
measures taken to
protect women from
rape, abduction and
other gender-based
forms of violence".
Children are
additionally
protected by
provisions of the UN
Convention on the
Rights of the Child,
to which Rwanda is a
state party, which
sets forth standards
for the protection
of girls from sexual
violence and
exploitation. State
parties must
undertake to protect
children "from all
forms of sexual
exploitation and
sexual abuse," and
in particular take
all appropriate
measures to prevent
"the inducement or
coercion of a child
to engage in any
unlawful sexual
activity" and "the
exploitative use of
children in
prostitution or
other unlawful
sexual
practices".(18)
States must take all
appropriate measures
to promote physical
and psychological
recovery and social
integration of a
child victim of any
form of neglect,
exploitation, or
abuse; torture of
any other form of
cruel, inhuman, or
degrading treatment
or punishment; or
armed conflicts.(19)
The International
Covenant on
Economic, Social and
Cultural Rights
(ICESCR), to which
Rwanda is also a
state party,
guarantees enjoyment
of its substantive
rights without
discrimination of
any kind. Women, on
an equal basis to
men, therefore have
the right to the
highest attainable
standard of health
and to education.
VI.
Domestic legal
framework
Rape and attacks on
decency are the
subject of articles
358 to 362 in the
Rwandese Penal Code,
which prohibit rape.
Under Rwandese law,
rape requires sexual
penetration of the
sexual organs, anus
or mouth, by a male
sexual organ or in
some cases by
another object.
Under article 360,
rape can be
perpetrated by
violent means or by
means of threats,
deception or by
taking advantage of
a person who is not
in full possession
of their faculties
due to illness or
any other cause,
making the
individual incapable
of giving consent.
Article 33 describes
child rape, and
articles 47 to 50
relate to the forced
or early marriage of
children under the
age of 18. Article
360 states that
rapes that result in
the death of the
victim are subject
to capital
punishment, and
Article 361 states
that if the act
causes grave health
problems to the
victim, the sentence
will double.
Similarly, child
rape resulting in
the death of the
child or infection
with an incurable
illness carries the
death sentence.
Amnesty
International is
opposed to the death
penalty under all
circumstances, as it
constitutes a
violation to the
right to life, and
considers it the
ultimate form of
cruel and inhuman
punishment. Under
article 361,
circumstances are
aggravated and the
sentence doubled if
religious ministers,
public sector
employees, doctors
and other healthcare
workers, teachers,
and individuals in
positions of
authority commit the
assault.
Organic Law No.
08/96 of August 30,
1996 on the
Organization of
Prosecutions for
Offences
constituting the
Crime of Genocide or
Crimes against
Humanity committed
since October 1,
1990 ("the Genocide
Law") categorizes
crimes according to
their severity.
Those in "category
1", for the most
serious offences,
include "persons who
committed acts of
sexual torture", for
which they may be
sentenced to capital
punishment and which
do not carry the
option of reduced
sentences. Domestic
law inflicts capital
punishment for
sexual violence only
when victims die as
a result (art. 359
al.3 and art.360
al.4 of the Penal
Code, cfr. n° 25);
in order not to
violate the
principle of
retroactivity,
sexual violence
perpetrated during
the genocide is
generally classed in
Category 1 only if
it constituted grave
sexual torture,
which can include
repeated rape or
mutilation. This
interpretation
harmonizes with
Article 316 of the
Penal Code, which
likens the use of
torture for the
execution of a crime
to
assassination.(20)
Provisions have been
made for women to
testify in special
courtrooms and to
maintain their
privacy. The
Genocide Law
stipulates that
victims are entitled
to the payment of
damages or
compensation.
Article 30 requires
that "convicted
persons whose acts
place them within
Category 1 under
Article 2 shall be
held jointly [sic]
and severally liable
for all damages
caused in the
country by their
acts of criminal
participation,
regardless of where
the offences were
committed", and
those in Categories
2, 3 and 4 shall
likewise be held
liable for damages.
Article 32 states
that "damages
awarded to victims
who have not yet
been identified
shall be deposited
in a victims
Compensation Fund,
whose creation and
operation shall be
determined by a
separate law. Prior
to the adoption of
the law creating the
fund, damages
awarded shall be
deposited in an
account at the
National Bank of
Rwanda opened for
this purpose by the
Minster responsible
for Social Affairs
and the Fund shall
be used only after
the adoption of the
law."
Organic Law N.
40/2000 of
26/01/2001 Setting
Up "Gacaca
Jurisdictions" And
Organizing
Prosecutions For
Offences
Constituting The
Crime Of Genocide Or
Crimes Against
Humanity Committed
Between October 1,
1990 And December
31, 1994 contains
provisions for
damages to be paid.
Article 90
stipulates that the
gacaca judgments are
to be forwarded to
the Compensation
Fund for Victims of
the Genocide and
Crimes Against
Humanity, which will
then fix "the
modalities for
granting
compensation".
Article 91 notes
that "any civil
action lodged
against the State
before the ordinary
jurisdictions or
before ‘Gacaca
jurisdictions’ shall
be declared
inadmissible on
account of its
having acknowledged
its role in the
genocide and that in
compensation it pays
each year a
percentage of its
annual budget to the
Compensation Fund.
This percentage is
set by financial
law."
Paragraph 9 of the
preamble to the 2003
Constitution
reaffirm Rwanda’s
"adherence to the
principles of human
rights enshrined in
the United Nations
Charter of 26 June
1945, the Convention
on the Prevention
and Punishment of
the crime of
Genocide of 9
December 1948, the
Universal
Declaration of Human
Rights of 10
December 1948, the
International
Convention on the
Elimination of All
Forms of Racial
Discrimination of 21
December 1965, the
International
Covenant on Civil
and Political Rights
of 19 December 1966,
the International
Covenant on
Economic, Social and
Cultural Rights of
19 December 1966,
the Convention on
the Elimination of
All Forms of
Discrimination
against Women of 1
May 1980, the
African Charter of
Human and Peoples’
Rights of 27 June
1981 and the
Convention on the
Rights of the Child
of 20 November
1989". Paragraph 10
of the preamble
records Rwanda’s
commitment "to
ensuring equal
rights between
Rwandese and between
women and men
without prejudice to
the principles of
gender equality and
complementarity in
national
development".
Article 11 of the
Constitution affirms
that "discrimination
of whatever kind
based on, inter
alia, ethnic origin,
tribe, clan, colour,
sex, region, social
origin, religion or
faith, opinion,
economic status,
culture, language,
social status,
physical or mental
disability or any
other form of
discrimination is
prohibited and
punishable by law."
VII.
Justice, impunity
and redress
Ten years after the
genocide, justice is
slow in coming for
many women. The
women’s rights
organization
Haguruka, in an
interview with
Amnesty
International in
March 2004,
estimated that
significantly less
than one hundred
women have seen rape
cases from 1994
through the ordinary
courts. According to
Haguruka, of the
twenty or so
defendants who were
found guilty, most
were sentenced to
death, but appealed
their sentences. The
organization notes
that women have
little interest in
bringing such cases,
as testifying-even
behind closed
doors-is traumatic
and increases the
chances that
community members
will find out about
the rape.
Cases of
grave sexual
violence are all
meant to be
transferred to the
ordinary
jurisdictions. If
such cases were
being discussed in
the gacaca
(or community-based)
jurisdictions, no
perpetrator would
yet have been
sentenced, as
gacaca has yet
to try a single
case.(21) Gacaca
is still in the
phases of
categorizing
suspects according
to the severity of
the crime, a process
that is expected to
take until the end
of 2005, before the
trial phase can
begin countrywide.
The Rwandese
government,
according to some
representatives of
bilateral
cooperations working
on gacaca and
members of Rwandese
civil society, seems
to have lost
interest in the
process. The
gacaca process
was frozen during
the months leading
up to the
presidential and
parliamentary
elections of August
and September 2003,
and had, at the time
of writing in 2004,
not yet recommenced.
Women who suffered
at the hands of RPA
or RPF soldiers face
an even more
difficult struggle
for justice.
Survivors of sexual
violence who accuse
soldiers face
reprisals and are
unlikely to see the
case advance.
Journalists note
that discussion of
crimes committed by
the RPA and RPF are
still taboo in
Rwanda. Only a few
isolated cases have
been brought to
court, though the
Rwandese government
maintains that all
RPA soldiers
suspected of having
committed rape have
been brought to
justice. Amnesty
International has
repeatedly asked for
statistical evidence
and names regarding
RPA/RPF perpetrators
brought to justice;
the Rwandese
government has on
several occasions
promised to produce
figures, but these
have never been
forthcoming.
VII.1. Compensation
fund
One of the recurrent
requests of rape
survivors from the
1994 period with
whom Amnesty
International
delegates spoke was
the establishment of
a compensation fund
for victims,
particularly victims
of the genocide. It
is very difficult
for victims to
recover effective
remedies from
suspected
perpetrators, as
they are usually
very poor,
particularly if they
have spent most of
the past decade in
prison. There is a
high risk of persons
sentenced to be made
bankrupt, and no
decision on damages
has reportedly been
enforced through
court action.
Although an old
version of the
compensation law for
victims of the
genocide was drafted
and discussed by the
Council of Ministers
in August 2002, it
has yet to be put to
a vote in the
National Assembly. A
new version of the
bill putting into
place the Fonds
d’Indemnisation
(FIND), or Indemnity
Funds, is apparently
being circulated.
The new version will
reportedly limit the
total funds
distributed by
compensating a fixed
amount to genocide
survivors.(22) Up
until this point,
the Rwandese
government has been
providing services
via the Fonds des
Rescapés du Génocide
(FARG) or
Genocide Survivors
Fund, in the form of
approximately 5% of
the state’s internal
revenue spent on
housing, medical and
educational
assistance, which
may be increased
under the new draft
bill. Many genocide
survivors complain
that the funds are
insufficient and can
be difficult to
access. In theory,
FARG is meant to
assist both Hutu and
Tutsi victims of the
genocide. However,
some Hutu survivors
with whom Amnesty
International spoke
said they been
denied assistance
and suspect their
ethnicity to be the
cause of the denial.
VIII.
Access to healthcare
"The truly indigent
are luckier than the
mid-level poor, as
they are likely to
get some medicine
for free, while the
moderately poor can
neither afford
medicine themselves
nor benefit from
government
assistance".
Olive Gatesi,
President of the
national network of
people living with
HIV/AIDS
VIII.1. Poverty and
access to healthcare
The majority of the
population in Rwanda
faces difficulty in
accessing basic
healthcare, much
less coping with the
extremely high costs
of AIDS treatments,
tests and
hospitalisations.
According to UNAIDS,
only an estimated
28% of Rwandese
households affected
by HIV are able to
afford even basic
health care; many
families borrow
money, sell assets,
including land, or
decide to forego
healthcare.(23) The
Rwandese healthcare
system operates on a
cost recovery
policy, which was
re-instituted soon
after the genocide,
though the
government and
international donors
are trying to
encourage people to
participate in
community health
insurance schemes.
The World Health
Organization
Commission on
Macroeconomics and
Health noted in
2001, "Experience
has taught
repeatedly that user
fees end up
excluding the poor
from essential
health services,
while at the same
time recovering only
a tiny fraction of
costs."(24)
Rwandese living in
extreme poverty are
sometimes able to
procure cards that
attest to their
indigence and allow
them to access free
services, including
medical care and
education for their
children. However,
the beneficiaries of
this program are
sometimes too poor
even to afford the
transportation to
the appropriate
medical centre. The
process for
procuring the
indigence card is
tedious, and some
destitute people
with whom Amnesty
International
delegates spoke had
not pursued the
option. Other women
accessed free
medical services
thanks to the FARG
assistance for
genocide survivors,
though these did not
cover some
HIV-related
services, including
ARV treatments.
Human rights
activists also noted
that the FARG and
indigence system
were open to
corruption, and that
high political
officials, including
members of
parliament,
benefited from FARG
assistance, which is
supposed to be
directed to the most
vulnerable people in
Rwanda.
Individuals who do
not find assistance
under these
categories find the
burden of living
with HIV/AIDS
onerous.
Transportation fees,
consultation fees,
medicines and tests
are well beyond the
means of most
Rwandese. Those few
who do access free
ARVs are still
required to pay for
hospitalisation and
consultation fees.
Many find themselves
deciding between
paying for medical
expenses or buying
food and wondering
how to apportion the
little food there is
between family
members. The
majority of Rwandese
who are not eligible
for free medical
care are often
unable to afford
basic treatments;
women have
reportedly been held
prisoner in health
centres after giving
birth and being
unable to pay for
medical expenses.
Their families
sometimes sell a
piece of their land
in order to find the
money to secure her
release. Women are
now reportedly
required by some
healthcare providers
to bring a guarantee
from a government
authority at the
cell-level (smallest
administrative unit
in Rwanda)
reassuring the
healthcare provider
that she will pay
for services
rendered.
"Services are
increasing, but we
can’t help
everyone...Sometimes
women are afraid of
having their
children tested
because it is simply
too painful for them
to know, when they
don’t have the means
to care for the
child".
Dr. Fabienne
Shumbuso, HIV/AIDS
specialist, Gitarama
hospital
VIII.2. Prevalence
of HIV/AIDS
HIV prevalence in
Rwanda is itself a
contentious issue.
UNAIDS estimated
adult prevalence at
8.9% in 2002, or
495,000 people
living with
HIV/AIDS, including
65,000 babies and
children, out of a
population of
8,162,715.(25)
Rwandese government
figures describe a
national prevalence
of between 11 and
13%(26). All parties
do agree that
prevalence is rising
and that it is far
higher in the
capital, Kigali-with
the most commonly
cited figure being
17%¯than elsewhere
in the country. A
2002 sentinel
surveillance of
women visiting
antenatal clinics
around the country
showed urban HIV
prevalence varying
between 3.7% and
13.0% in sites
tested with a median
site-specific
prevalence of 6.9%,
and rural prevalence
between 1.2% and
5.1%, with a median
site-specific
prevalence of
3.0%(27). Based on
this survey, the
United States Centre
for Disease Control
estimates prevalence
at 4.9%.
VIII.3. Availability
of ARVs and the
international
response
The availability of
medical care for
PLWHA has increased
significantly in the
past few years, but
does not begin to
meet the needs of
the population,
including survivors
of sexual violence.
Voluntary
counselling and
testing (VCT)
programs are
expanding and
administered free of
charge. Experts in
Rwanda estimate the
number of patients
clinically in need
of life-prolonging
anti-retroviral
(ARV) therapy at
between 50,000 and
100,000. Rwanda is
currently in a
period of rapid
scale-up of ARV
delivery, but as of
January 2004, only
about 2,000 Rwandese
were being treated
with ARVs, including
approximately 800
who paid for their
own supply of
medicine. A month of
ARV treatment,
without additional
tests, cost about
33,000 Rwandese
francs, about 59 US
dollars, in January
2004. 3,000 to 5,000
patients are
projected to be
receiving treatment
by the end of 2004,
depending on arrival
of funds, logistical
considerations and
capacity of
overburdened
healthcare workers
to follow their
patients. Many more
patients are
benefiting from
antibiotics and
treatment of
opportunistic
infections (such as
tuberculosis) to
stave off serious
illness and death.
Donors such as the
Global Fund to Fight
AIDS, Tuberculosis
and Malaria, The
World Bank and
bilateral donations
pay for these
initiatives.
Some doctors and
policy advisors
expressed concerns
to Amnesty
International that
treatment programs
in Rwanda have
during the past year
received as much
money as they can
absorb. They cite
the limited capacity
within the health
sector for adequate
medical follow-up of
large numbers of
HIV/AIDS patients.
Other doctors hotly
contested this
notion and believe
that it would be
possible to scale up
ARV delivery
significantly. These
medical
professionals do
concede that ARV
scale-up poses
logistical problems,
for instance that
hospital and clinic
management needs to
be reconfigured with
every new influx of
money and services
that is made
available. In either
case, many gaps
remain in
ameliorating the
daily living
conditions and
addressing basic
needs of PLWHA, such
as food assistance
and nutritional
programs, school
fees, housing and
psychosocial
support.
VIII.4.
Government-coordinated
responses to
HIV/AIDS
The National
Commission to Fight
Against AIDS (CNLS)
was established in
1986, and a first
plan for monitoring
and preventing
HIV/AIDS put in
place in 1988. Since
then, the government
of Rwanda,
multilateral and
bilateral donors and
non-governmental
organizations (NGOs)
have made strides to
expand prevention,
care and treatment
services available
in the country.
President Kagame and
First Lady Janet
Kagame have both
committed
considerable effort
to domestic advocacy
and international
lobbying. Donors are
generally satisfied
with the Rwandese
government response,
planning and
implementation and
note progress in
coordination and
procurement
procedures.(28)
However, the same
sources acknowledge
that a weak
healthcare system,
management problems,
stigma surrounding
HIV/AIDS
(exacerbated by some
healthcare
personnel),
difficulties in
changing behaviours
and capacity
limitations all pose
substantial
challenges to
combating the
disease. Donor
contributions of
money and technical
support have
sometimes been
uncoordinated,
resulting in glaring
gaps in services,
occasional
duplication of
efforts and a high
concentration of
service provision in
urban areas.
The Rwandese
government has
developed a national
strategic framework
and multi-sectoral
plan for the
2002-2006 period
that continue
prevention,
monitoring and VCT
efforts, prepare for
scale-up of
treatment programs
and step up the
presently rather
weak community and
home-based care
systems to support
PLWHA. Government
ministries, private
businesses, NGOs,
religious groups and
other civil society
organizations are
all requested to
participate in
curbing the spread
of the virus and
mitigating its
consequences. Some
private businesses
in Rwanda have
particularly strong
programs to offer
ARV treatment to
employees and have
acknowledged that it
makes business sense
to do so.
VIII.5. Access to
ARVs for survivors
of sexual violence
Most women survivors
of sexual violence
who do benefit from
free ARVs at
government or
private clinics
entered treatment
programs following
their participation
in prevention of
mother-to-child
transmission (PMTCT)
programs. Survivors
of rape are not
accorded special
privileges in
government ARV
treatment plans,
though there are
very limited
privately
implemented programs
that offer free
treatment, in
particular for
genocide widows with
HIV/AIDS and their
children. The
government does
acknowledge that
rape, including
child rape, is a
significant factor
in HIV transmission
in addition to
constituting a grave
violation of the
individual’s rights.
In March 2003, the
Minister of Health
and State Minister
for HIV/AIDS both
confirmed to Amnesty
International
delegates their
intention to put in
place post-exposure
prophylaxis (PEP)
for survivors of
violence to reduce
the likelihood of
HIV
transmission(29).
However, no
implementing
partner, government
official or donor
with whom Amnesty
International spoke
in 2004 had seen any
concrete plans to
realize this stated
government
intention.
Genocide survivors
living with HIV
often complain
publicly that
defendants awaiting
or undergoing trial
at the International
Criminal Tribunal in
Tanzania, accused of
high-level
participation in the
genocide, receive
ARVs and high
quality medical
treatment while in
prison. Meanwhile,
women who were
survivors of
atrocities lack
access to medical
treatment and a
basic standard of
well-being. Many
women have expressed
a sense of profound
injustice at this
differential
treatment.
VIII.6. Privileged
access to ARVs
Some of the people
whom the Rwandese
government sponsors
for free ARV
treatment are
reportedly military
officers. The
Ministry of Defence
pays for their ARV
treatment, but not
for the treatment of
ordinary soldiers
who, like many
others in the
population, cannot
afford to pay for
ARV therapy.
High-level civilian
authorities also
reportedly benefit
from free ARV
treatment, in spite
of their relatively
high incomes. Human
rights sources have
told Amnesty
International that
the RPF government
have sometimes used
ARV treatment as a
bargaining chip and
have threatened
these civilian
authorities with
revoking treatment
if they did not
support RPF
policies.
IX.
Eligibility and
access to ARVs
Some
donors and
implementing
partners are worried
that the phase of
selecting patients
for limited ARV
treatments will
prove problematic
and open to
manipulation, in
spite of agreed
protocols for
deciding on patient
eligibility. The
World Bank
assessment paper
warns of "(i)
pressures to select
participants, as the
number of people
requiring treatment
will exceed
financial and
institutional
capacities; (ii)
risk of leaving
behind the most
needy who have
limited negotiating
skills and low
levels of education;
and (iii) concerns
over financial
sustainability,
particularly in
light of the large
pool of infected
persons and the high
cost of drugs for
this chronic
illness".(30)
A Ministerial
Instruction was
issued in 2003
"determining the
conditions and
modalities for
health care delivery
to persons living
with HIV/AIDS". This
instruction makes
provisions for
Technical Committees
for Patient
Selection, which
includes
representatives from
the health care
provider, heads of
psychosocial teams
designated by the
head of the health
care delivery
institution and "two
representatives of
associations of
PLWHA located within
the geographical
area served by the
health institution
designated by the
network of persons
living with HIV".
The ministerial
instruction has been
hailed as a fair
document that sets
out logical criteria
for eligibility for
access to treatment
and financial
requirements based
on medical
considerations,
proximity to
treatment site and
acceptance of
behaviour that
minimizes risk of
further HIV
transmission.
Refugees living in
Rwanda are not
explicitly excluded
from receiving
treatment. However,
the requirement that
patients must have a
fixed address for
six months prior to
treatment - a
requirement intended
to facilitate
delivery and
encourage continuity
- means that
refugees (and others
without a fixed
address) are less
likely to be
eligible for
treatment.
IX.1. Access to
HIV/AIDS-related
services and the
critical role of
associations of
PLWHA
The rationale of
grouping as many
people living with
HIV/AIDS into
associations as
possible is to have
a clear means of
organizing and
delivering services
to the population,
for associations to
provide moral and
psychological
support to PLWHA and
to educate and
assist people who
have just learned
their HIV status
following voluntary
testing. The
associations
typically have
weekly meetings and
serve as focal
points for HIV/AIDS
education, any
delivery of aid or
assistance, and
distribution of
information about
healthcare
opportunities. For
most PLWHA,
particularly in
rural areas,
associations will be
their point of
contact for whatever
information and
assistance is made
available.
Membership in an
association of PLWHA
is not a
precondition or
requirement for
people to access
ARVs. However, local
authorities have
sent strong signals
that people with
HIV/AIDS had to join
associations if they
were to have a
chance of receiving
ARVs and other
treatments and
services. Some
people with whom
Amnesty
International
delegates spoke
acknowledged that
they recently joined
associations in
hopes of benefiting
from projected ARV
scale-ups and other
services. Those who
are perceived to be,
or regard themselves
as being, in
opposition to the
government are
afraid that they
will face
discrimination
within the
association when
services are made
available-or indeed,
can already attest
to such
discrimination. Some
NGOs fear that
government
statements
transmitted via
associations might
raise expectations
of access to
healthcare and other
services that are
impossible to
fulfil, further
frustrating the
hopes of suffering
individuals.
In some cases,
association
leadership appears
to be working
against the best
interests of PLWHA.
Even high-profile
associations of
genocide survivors
or PLWHA with
international
reputations are
routinely criticized
for diverting funds
and for being highly
politicised. Several
journalists and
PLWHA cited
associations that
were run by
individuals who did
not have HIV, but
were using the
associations as a
means of collecting
money for themselves
personally. Other
PLWHA spoke of their
exclusion from
associations because
of conflicts they
may have had with
local politicians.
In other cases, the
president and
vice-president of an
association might
have benefited from
services, while the
membership was left
with little or
nothing. Often the
management issues
highlighted the gap
in education and
money between
leadership and
members. Some
association members
said they did not
dare to speak out
publicly against the
poor leadership for
fear they would be
entirely denied
access to services.
One activist for
PLWHA said, "Here,
farmers aren’t free
to ask for what they
want, even to make
suggestions. They
are afraid of prison
or maltreatment, so
they say nothing."
In one case, the
HIV-negative
leadership of an
association excluded
some PLWHA from the
association because
they had asked about
opaque financial
transactions of the
association. Because
the association
president was
politically
well-connected, she
was able to prevent
the excluded
individuals from
registering a new
association.
"Sometimes people
who are HIV-positive
are excluded from
associations because
they have problems
with politicians;
sometimes you find
associations whose
president doesn’t
even have HIV".
Woman living with
HIV/AIDS, Kigali
"In many
associations, you
find that the only
people receiving ARV
treatment are the
president and
vice-president.
Sometimes this may
be because they are
educated and so are
the only ones
wealthy enough to
afford to buy drugs
every month. But it
may be that they are
using the
association to
ensure that they
will have access to
medicine. There are
many problems with
transparency in the
association, but
people may not speak
out because they are
afraid to lose any
hope of accessing
medicine".
Journalist, Kigali
The leaders of these
organizations are
literally being
given the power of
life and death over
membership, as they
are often empowered
to accord or deny
services or
donations to
membership. Adequate
measures should be
put in place to
ensure that they are
operating
transparently, that
members have a means
of filing grievances
without suffering
retribution and that
PLWHA have access to
services through
means other than
associations.
Additionally,
associations tend to
cease functioning if
members of
leadership become
sick; efforts to
democratise
associations would
help ensure that
they represent the
best interests of
their constituents
and help to prevent
associations from
being rendered
dysfunctional by the
illness of leaders.
IX.2.
Access to
HIV/AIDS-related
services and
national
associations of
PLWHA
At higher levels,
the National Network
of PLWHA (Réseau
National), a network
of some 250
associations of
PLWHA, has been
criticized for being
a government
mouthpiece rather
than representing
the interests of its
membership.
Information
reportedly tends to
flow from the top
down rather than
from the grassroots
up to the policy
makers.
The National
Association to
Support People
Living with AIDS
(ANSP), under the
Ministry of Local
Government
(MINALOC), has
itself been twice
sanctioned for
embezzlement and
mismanagement. More
seriously, some
PLWHA say they or
people they know
have been
manipulated by ANSP.
They cited instances
when individuals
were called upon to
declare their HIV
status publicly,
sometimes in a
crowded stadium,
with the promise of
being given ARV
treatments.
Reportedly, the
individuals who
declared their
serological status
publicly received
nothing in exchange,
in spite of the
promises ANSP had
made, but did suffer
the predictable
stigma that followed
the event. At least
one young man who
testified has since
died of an
AIDS-related
illness. One
journalist told
Amnesty
International,
"There are Rwandese
government officials
whom everyone
suspects of having
HIV, and yet they do
not speak out about
their situation to
help destigmatise
the disease, because
they already can pay
for ARVs; and yet
the government
expects the poor
people to do just
that."
X.
Freedom of
expression and
access to
HIV/AIDS-related
services
Articles 19 and 20
of the Universal
Declaration of Human
Rights protect the
rights to freedom of
expression and
assembly
respectively.
Article 19 protects
the "freedom to hold
opinions without
interference and to
seek, receive and
impart information
and ideas through
any media and
regardless of
frontiers". PLWHA
should have the
right to receive
information
regarding their
disease as well as
to participate in
representative
mechanisms to
advocate for
provisions that
ameliorate their
access to
health(31). Amnesty
International is
concerned that a
climate of fear
exists that curtails
people’s willingness
to exercise their
right to freedom of
expression. PLWHA
with whom Amnesty
International
delegates spoke
reported problems
expressing
themselves within
the context of their
associations,
particularly if they
commented on the
financial management
or equitable
distribution of
services to
association members.
The Government of
Rwanda should give
meaningful
assurances that
PLWHA who do
peacefully exercise
their right to
freedom of
expression will not
be subject to
expulsion, denial of
services or
discrimination in
receiving services
or treatments, and
other forms of
intimidation. One
association head
commented, "You
never see
demonstrations in
Rwanda. People
living with HIV are
very frustrated when
they see their
health deteriorate
and there are many
promises but no
services, but they
are too scared to
demonstrate."
One exiled
journalist cited the
case of the former
president of the
ANSP who was the
subject of a 2002
newspaper article in
Umuseso, an
independent
newspaper. The
article pointed out
that she did not
have HIV and accused
her of embezzling
money from the
association. In
response, the ANSP
president organized
a public
demonstration at the
Umuseso
offices and
reportedly urged the
members of her
association to raid
the office and
destroy their
equipment, however
the Umuseso
staff frustrated
their attempts.
Another limitation
on the freedom of
expression of PLWHA
is the generalized
atmosphere of
silence that lies
heavily over Rwanda.
Detention, death
threats and exile
are a common fate
for independent
journalists in the
country. Journalists
told Amnesty
International that
certain health
issues were
essentially
off-limits to the
media, if the media
workers did not wish
to incur threats and
reprisals. Several
journalists
interviewed by
Amnesty
International said
they were aware of
corruption by
government and NGO
programs related to
HIV/AIDS, but were
afraid to report
extensively on the
issue for fear that
the government or
organizations might
take retaliatory
action. These
journalists cited
the government
Genocide Survivors’
Fund, prominent NGOs
that support
genocide survivors
and associations of
PLWHA as
organizations whose
leadership and/or
personnel were
allegedly engaging
in corruption.
Journalists told
Amnesty
International that
they hesitated for
the same reasons to
report on the free
ARV treatment that
military officers
and high-level
civilian authorities
received, in spite
of the fact that
most of these
beneficiaries were
in a high-income
bracket and could
afford to pay for
their own treatment.
Journalists could
also cite cases of
individuals who had
been fired
reportedly because
their employer
learned of their
serological status,
but the journalists
said they would be
unlikely to
broadcast such
stories for fear of
reprisals by the
employer against the
journalist or his or
her sources.
XI.
Stigma and
discrimination
related to HIV
status
"When my husband
learned I had AIDS,
he left me and our
three-month-old baby
immediately. I
stayed home until
the landlord forced
me out of the house.
Then I returned to
my family home in
Gitarama. There I
was almost kept in
quarantine because I
was symptomatic.
They belittled me
constantly in my
family and in the
village".
Christine, from
Gitarama
As in many
countries, HIV
infection in Rwanda
remains associated
in many people’s
minds with
behaviour-particularly
with sexual
practices-considered
immoral.
Predictably, taboos
surround the
discussion of the
disease and impact
on individuals’
ability to access
appropriate health
care and other basic
rights. While some
women could cite
neighbours or
colleagues who had
been supportive
during their
illness, nearly all
reported incidents
of intolerance,
persistent teasing
and denigration that
they or their
families had
suffered once they
were suspected of
having HIV.
In addition to the
stigma of having
been raped, rape
survivors living
with HIV/AIDS are
also marginalized,
insulted or
belittled because of
their infection.
Some women with
HIV/AIDS have
reported being
belittled for having
been raped, even if
they did not
contract HIV/AIDS as
a result of rape;
their tormentors
assumed the women
had been raped
because sexual
violence was such a
widespread component
of the genocide and
war.
XI.1.
Stigma within the
family
Women
who admit to having
HIV risk social
exclusion or
abandonment, which
they may already
have suffered as a
result of sexual
violence. Several
women interviewed by
Amnesty
International
delegates were
particularly
distraught that
their relationships
with their partners
had deteriorated or
ended since they had
revealed their
serological status.
While there has been
a substantial push
in Rwanda to
encourage couples to
get tested for HIV
together, in some
cases women learn
their HIV status
only when they seek
prenatal care and
are made aware of
prevention of
mother-to-child
transmission of HIV
(PMTCT) programs.
They may then be
reluctant to inform
their partners of
their status for
fear of being
abandoned-even if
they are certain
they were infected
by their current
partners.
"I was raped
during the war by
five interahamwe,
even though I am
Hutu. I was a
virgin, so maybe the
rape was the cause
of my sterility.
When I got tested
for HIV in 2000, my
husband tore up the
test results. He
can’t accept that
I’m in an
association for
people living with
AIDS, and that I’m
sterile... I haven’t
gotten food from him
for five months... I
don’t get assistance
from the government
programs because I
am of the wrong
ethnicity".
Rape survivor,
HIV-positive, from
Gitarama.
Numerous women whom
Amnesty
International
interviewed reported
that their male
partners had
abandoned them and
their children,
without leaving
provisions to
support them. In
most cases, the men
reportedly blamed
their female partner
for bringing AIDS
into the
relationship and
considered them
worthless or a
burden, as being
marked for death.
Other male partners
reportedly denied
their partners and
children food, stole
donated rations
and/or refused
material goods such
as clothing.
"I was in Nyanza
during the war, and
my husband was
killed. The militia
raped me and my
sisters-in-law.
Those who talked
back were killed. I
was shy, so I
survived...I was
already pregnant at
the time, now my
child is ten years
old...My second
husband is out of
his mind, and I have
gotten sicker
because of the
worries he gives me.
He abandoned me when
he learned I had
HIV, which is why I
am crying so much
now. He denigrated
me in front of the
neighbourhood, so
now my neighbours
also make fun of me.
Maybe my husband is
healthy, so that’s
why he did it. He
refuses to get
tested. I am worried
because I have no
property, no money
for food for the
children, and we
live badly. I am
always sick and we
are too poor...I
don’t get help from
the government
because I didn’t
lose enough people
during the
genocide".
Rape survivor,
Kigali
Some women spoke of
the difficulties of
getting food from
their partners,
children or family
members since their
infection had been
discovered. One
woman in
Kigali-Ngali
confronts a painful
situation with her
daughter, "My child
has no more
respect-she takes my
rations and sells
them to keep the
money for herself,
and says I am just a
candidate for death
anyway."
Stigmatisation of
this nature is not
only traumatizing
but can reduce the
mental and physical
capacity of the
person to cope with
the disease and the
hardships it
imposes. The
Rwandese Association
for Trauma
Counsellors (ARCT)
reports that it has
noticed a marked
increase in the
number of people
coming in for
counselling for
HIV-related trauma
and stigmatisation.
XI.2.
Government response
and stigmatisation
The
Rwandese government
and local and
international NGOs
have made great
strides in
sensitising the
population to the
risks of HIV
infection. By most
accounts,
stigmatisation is
gradually decreasing
as the efforts of
medical personnel,
government, business
and NGO begin to
bear fruit.
Nonetheless,
stigmatisation
remains one of the
most painful
elements of HIV
infection for many
Rwandese. The nature
and formulation of
the messages
distributed during
HIV prevention
campaigns have
reportedly
contributed to
increased
stigmatisation of
some PLWHA. For
instance, gatherings
of people may be
informed about
certain risk
behaviours and the
consequences and
symptoms of HIV
infection, without
receiving messages
about how to care
for PLWHA and their
families or
assurances that they
cannot contract HIV
through casual
contact. An
apparently common
consequence is that
people living with
HIV/AIDS often find
that they suffer
most right after HIV
prevention
campaigns, such as
the one on national
AIDS day on 1
December 2003:
"My children were
tormented on
December 1st after
the AIDS day
activities. My older
children are aware
of my condition and
are courageous, but
the little ones
can’t accept that
their mother is
infected. The little
ones shout back at
those who tease them
and say they don’t
believe their mother
is sick". Woman
living with HIV,
Kigali-Ngali
As mentioned above,
people who belong to
associations of
PLWHA often face
discrimination
because they are
easily identifiable.
"People know that
we come to these
meetings on the
weekend, so they
assume that we have
AIDS. Sometimes our
children are
tormented as a
result, and then may
come to confront us.
They treat the whole
family as if it is
infected, and many
people still seem to
believe that you
might get HIV just
from greeting
someone. You risk
being treated as a
second-class
citizen; people
think of you as
someone about to die
and don’t pay much
attention to you.
Some family members
may think it’s not
worth spending money
on you since you
will die anyway".
Member of PLWHA
association, Umutara
This policy of
grouping people into
associations,
supported by the
Rwandese government
and some foreign
technical
consultants, may in
the long run
facilitate service
delivery and help to
combat stigma.
However, in the
short term, it has
in many cases
contributed to an
increase in
stigmatisation and
diminution of the
rights of PLWHA and
their families;
meanwhile service
delivery remains
scant to
non-existent. While
PLWHA usually
recognize that they
are grateful for the
moral support and
discussion forum the
association
provides, their
membership can
contribute to
social, educational
and economic
marginalization for
themselves and their
families. Educated
or professional
Rwandese are
unwilling to
participate in
associations because
they either fear
being identified as
having HIV and
consequently fired
from their jobs or
simply do not
identify with the
others in the
association.
XI.3.
HIV/AIDS-related
stigmatisation and
socio-economic
rights
Journalists,
government
officials, local and
national NGOs and
policy advisors
could all cite cases
of individuals
having been
dismissed from their
work because their
employer suspected
their HIV infection.
The employer is
likely to invent an
excuse other than
the employee’s
health status for
making him or her
redundant, but may
then hire an
inferior replacement
presumed to be
HIV-negative.
Théodette, age 34
with three children,
cleaned and did
errands at the
Kigali office of an
international
network of audit
firms. She
contracted HIV after
being raped during
the genocide. Her
youngest daughter
was herself raped
and contracted HIV;
her daughter’s
rapist is now in
Gikongoro prison.
Théodette has sole
responsibility for
her children. On 14
January 2004, her
employer reportedly
cut her salary
because he said that
he would have to
hire another
employee, who would
be paid from her
salary, to
supplement her work
because of her
problems with
illness. In fact,
she has been taking
anti-retrovirals
since July 2003, had
not yet manifested
symptoms of AIDS and
is still strong. Her
employer had
initially paid for
her ARV treatment,
but then ceased,
reportedly to
encourage her to
quit. He also
reportedly
threatened her,
repeatedly saying,
"Théodette, tomorrow
you and your
daughter will die,
why are working
here?" On 16
February, her
employer wrote a
letter of
resignation, which
he alleged Théodette
had written herself,
and forced her to
leave work. She
subsequently went to
see her trade union,
a human rights
organization,
several
highly-placed
persons in the
National Commission
to Fight HIV/AIDS
(CNLS) and someone
from the Genocide
Survivors Fund, who
have offered her
advice on how to
confront her former
employer. Théodette
has not worked since
16 February, and is
having increasing
problems finding
money for food and
rent. She has some
money saved to buy
ARVs, but does not
know what she will
do when that runs
out.
Although the new
constitution forbids
discrimination, no
cases are known to
have been prosecuted
for employment
discrimination based
on HIV status.
"Instead of being
treated, you get
kicked out of your
job, then they hire
someone much worse
than you-it hurts
the development of
the country," said
one government
official in Kigali.
Doctors reported
that their patients
often did everything
in their power to
prevent their
employer from
learning about their
illness and would
invent excuses to be
allowed to go to the
hospital for
treatment.
Many of the people
living with HIV/AIDS
whom Amnesty
International
interviewed in March
2004 reported that
they had difficulty
accessing
micro-credit or bank
loans, at a time
when they were
particularly
vulnerable
economically. "It is
difficult to get
micro-credit loans
at the Banque
Populaire because
the management is
worried that I will
die before I pay
back the loan.
Because my status is
known in the
community, I am
being stigmatised,"
says Bernadette from
Kigali-Ngali. PLWHA
also reported
priests refusing to
perform marriage
rites between
HIV-positive
individuals,
difficulty in
accessing insurance
or refusal of
clients to continue
buying from them.
One woman described
her attempt to pay a
kind of insurance
for her child’s
school fees now that
she is healthy and
earning money, in
the event of her
inability to pay
once she becomes
symptomatic;
however, the school
refused. Government
authorities have
reportedly urged
insurance companies
by radio broadcast
not to deny
insurance to PLWHA.
"My husband’s
family is waiting
for my death to
recuperate the
property...I am very
much stigmatised by
my family. My mother
still loves me, but
she is old and can’t
really help. My
family and others in
the community think
they can be infected
even by greeting me.
I didn’t suspect I
was HIV-positive
initially. I was the
first wife of a
polygamous man. He
and the other wives
died of AIDS. He
rarely stayed with
me-he had
practically
abandoned me-so I
thought I was safe
from HIV. I started
to have symptoms and
learned I was
infected, so I went
to the hospital and
also got traditional
medicines, but
neither helped".
Perpétue,
Kigali-Ngali.
XI.4.
Health consequences
of stigmatisation of
PLWHA
Although
sensitisation
programs have been
undertaken, the
stigma attached to
HIV and
discriminatory
attitudes prevailing
in Rwandese society
often still
encourage PLWHA to
remain silent about
their status. This
silence can have
very real health
consequences, such
as discouraging
women from seeking
medical advice and
treatment or
facilitating the
transmission of the
disease to partners
or children when the
infected person is
unwilling to discuss
her illness.
Pregnant women who
learn they are HIV
positive are advised
to feed their
infants formula
milk, rather than to
breast-feed, to
reduce the
likelihood of
infection. As in
many countries,
women are reluctant
to choose
alternatives to
breast-feeding not
only because of the
additional cost but
also, in a culture
where breastfeeding
is a nearly
universal practice,
because they fear
their families,
neighbours and
community will
identify them as
HIV-positive and
shun them.
XII.
Children of people
living with HIV/AIDS
"I
was raped by
militia. I was in
the Zone Turquoise
in the south... My
husband left when he
learned I had HIV
and he didn’t. He
divorced me and left
me with three
children. Now I have
problems paying for
rent, school and
food... As it is, I
live thanks to my
friends and
neighbours. My
six-year-old also
has many health
problems, and never
seems to get better.
She should be on
ARVs, but I can’t
get them for her,
and she is allergic
to antibiotics. We
eat badly...My
greatest worry is
for my children.
What will happen to
them if I die? I am
trying to get them
sponsors abroad, so
at least I will be
able to die in
peace." Tharcissie,
age 29, Kigali
"My youngest child
is HIV-positive; he
is five years old
and always sick. I
learned I had HIV
when I was pregnant
with him. My husband
is also sick. He
used to work as a
cook, but now he
can’t work like he
used to. Finding
school fees, clothes
and medicine for the
kids is already
almost impossible.
What will happen to
them when I die?"
Zawadi, age 37, from
Gikongoro.
"I
have four children,
the second- and
third-born have HIV,
though they should
get ARVs soon. My
landlords don’t know
I have HIV, and I
won’t tell them
otherwise they will
know I am incapable
of paying the rent
and chase me away...
We live with famine
constantly, and I
worry because I
don’t even have a
piece of property to
give to my children.
If I died, I would
be more at ease if I
knew my children had
a small house".
Béatrice, age 36,
from Butare
"I am
afraid because I am
no longer strong
enough to take care
of myself and my
children. I feel my
health
deteriorating. I
have told my
children of my HIV
status, and they
were sad, but can’t
do anything about it
".
Jeanne, age 50, rape
survivor taking care
of three of her own
children and two of
her deceased
brother’s children,
Kigali.
"My child just
finished sixth
grade, but now there
is no money to pay,
so he just sits at
home now. I have no
family or
neighbours, so my
child helps me. We
don’t have enough
food". Immaculée,
age 45, Butare.
As
the quotes above
demonstrate, the
fate of their
children is the
primary concern of
many women living
with AIDS. Within
days of their sole
parent’s death,
children may find
themselves forced to
fend for themselves,
although often they
are too young to
provide for
themselves and their
siblings.
Inevitably, a
percentage of these
children end up on
the street, where
their health
deteriorates, their
nutrition is poor,
and they are
vulnerable to all
manner of abuses. A
study by Johns
Hopkins University
reported that 93% of
a cohort of girls
living on the street
reported having been
sexually abused.(32)
Those who are able
to find a home,
whether by
inheriting,
squatting an
abandoned house or
constructing a
makeshift shelter,
are nearly as
vulnerable.
Individuals living
in child-headed
households are
particularly
vulnerable to
physical aggression
including sexual
assault, or may be
encouraged to trade
sex for food and
material goods. Some
children see no
alternative to
prostitution for
providing for
themselves and their
siblings. A
percentage of
orphans will
inevitably abandon
their education
either for lack of
school fees or to
find food, and they
may not know how to
access support
services that may be
available to them.
Child-headed
households are
frequently isolated
from the community
and have no obvious
structure or
authority to assist
them; some children
are very young and
completely lack the
skills required to
look after children
even younger than
themselves and to
provide for their
basic needs.
Some of the children
suffer from the
trauma of having
lost a parent and
family structure;
some are themselves
infected with HIV.
Hospital staff
points out that it
is nearly impossible
to administer ARVs
to street children
or children living
alone because they
cannot ensure that
the child will take
the drug
consistently,
besides which the
child may have no
home, food or other
care, and will look
to the health centre
to provide emergency
assistance.
The non-governmental
organization CARE
has a project in
Gitarama to support
child-headed
households, and says
that the problem
needs the urgent
dedication of
resources to develop
a network of
assistance and
support for these
households. The
project implementers
note that there is
scant understanding
or acceptance of
children’s rights in
Rwanda, and that
human rights
education needs to
be integrated into
any solution. One
project director at
CARE emphasized the
need for support
organizations to be
proactive: "It is
essential to get
assistance to women
living with AIDS, to
prepare the terrain
for the legal and
logistical aspects
to be taken care of
before the children
become orphans. If
the inheritance is
dealt with, if there
is trauma
counselling and
psychological
preparation, and a
community structure
is in place
automatically to
support the
children, it would
help a great deal."
CARE advocates a
community mentoring
program to provide
adult guidance to
the child-headed
households. Of the
households that CARE
assists in Gitarama,
80% of the
children’s parents
have died of
illness, while 20%
died during the
genocide and war.
Not only would such
assistance prove
invaluable to the
children, it would
also be a great
relief to ailing
mothers, some of
whom suffer severe
depression as their
health worsens, due
to daily concern for
their children.
XIII.
RECOMMENDATIONS
XIII.1. TO THE
GOVERNMENT OF RWANDA
Healthcare and
economic and social
rights
The Government
should, with the
help of UN agencies,
bilateral donors and
other experts as
appropriate,
equitably enhance
the provision of
medical care to
survivors of sexual
violence. Programs
should be
constructed in such
a way as to ensure
equal access for
both rural and urban
populations.
The Government
should ensure that
women and girls who
have been victims of
sexual violence have
access on a
voluntary basis to
counselling and
testing for HIV/AIDS
and other sexually
transmitted
diseases,
post-exposure
prophylactic drugs
to prevent HIV
infection and other
measures to protect
the health of the
woman.
The Government, with
the assistance of
international
donors, should
expand psychological
counselling programs
for rape survivors
and ensure that
these constitute an
integral part of the
health care system.
The Government must
ensure that all
decisions and
policies concerning
the provision of
health care are
consistent with its
obligations under
the International
Covenant on
Economic, Social and
Cultural Rights, to
which it is a state
party. It should
seek international
assistance as
necessary so as to
be able to provide
health care without
discrimination of
any kind.
The government
should ensure that
its resources are
efficiently and
fairly allocated to
PLWHA in need of
assistance, without
discrimination of
any kind. The needs
and views of PLWHA
should be consulted
and taken into
account in the
formulation of
government programs
and strategies, at
both national and
local level.
The government
should continue and
should strengthen
education programs
aimed at the general
public, law
enforcement
officials and the
judiciary concerning
existing legislation
on inheritance,
marriage and land,
that protect the
rights of women.
In meeting its
obligations under
the ICESCR to
respect, protect and
fulfil the right to
food, the government
should ensure that
the particular needs
of families living
with HIV/AIDS are
taken into account.
Such needs include
the additional
burden on resources
faced by such
families, in
addition to specific
health needs. The
government should
seek international
assistance and
co-operation in this
regard and
international donors
should provide
appropriate support.
The Government
should implement and
enforce
anti-discrimination
provisions in the
Constitution and
other legislation by
taking action
against employers
who discriminate
against PLWHA by
refusing to hire
them, by requiring
HIV tests prior to
hiring or by firing
them once they learn
the employee’s HIV
status. The
Government should
likewise prevent
banks and credit
agencies from
discriminating
against people
because of their
serological status,
or government and
religious officials
from refusing to
marry individuals
with HIV/AIDS.
The Government, with
the assistance of
international
donors, should make
provisions for the
children of
PLWHA-before the
children are left
orphan-to ensure the
protection of
children’s rights,
including the right
to adequate food,
clothing, housing,
education and the
highest attainable
standard of health.
The government
should also provide
assistance in
claiming inheritance
and other rights,
and reliable adult
support in managing
the household if
needed. Children
already living on
the street or in
precarious
conditions should
benefit from special
assistance to ensure
the enjoyment of the
above.
Immediate
prevention and legal
redress
The Government must
continue public
education campaigns
regarding the rights
of women and the
rights of children
and encourage the
public to bring
cases of sexual
violence to the
police, including
sexual violence
committed against
domestic workers,
street children and
sex workers, and to
continue educating
police and the
judiciary on how to
respond and create
an environment where
individuals feel
comfortable
reporting such
cases.
The Government
should continue
investing in
long-term and
in-depth training of
the members of all
security personnel,
including the armed
forces and Local
Defence Forces, in
all ranks including
those in positions
of authority over
others to ensure
that they do not
commit, condone or
acquiesce in rape
and other crimes of
sexual violence.
The Government, with
the financial
assistance of
international
donors, should pass
without delay a law
compensating
survivors of
violence during the
genocide and war for
the abuses they
suffered. This law
should compensate
victims of all
ethnic groups for
abuses in a
non-discriminatory
manner.
The Government
should continue to
press forward with
the investigation
and prosecution of
reported cases of
sexual violence,
whether committed in
the context of the
genocide or by the
Rwandan Patriotic
Army, as well as
recent and future
cases of sexual
violence.
The Government
should invest the
necessary energy and
resources into the
gacaca
tribunals to ensure
that they are able
to try cases in a
timely and fair
manner.
The Government
should continue full
cooperation with the
International
Criminal Tribunal
for Rwanda.
The Government
should build the
capacity of the
security forces and
judiciary to ensure
that allegations of
rape and other
crimes of sexual
violence are
promptly
investigated and
where founded, the
alleged perpetrators
are brought to
justice. Measures
should include:
· issuing clear
guidelines to law
enforcement agencies
insisting on the
duties of law
enforcement
officials to
investigate acts of
violence against
women, whoever the
perpetrator;
· the continued
provision of
specific training to
all law enforcement
officials and the
judiciary in
relevant areas of
international human
rights law to
enhance the
understanding of
violence against
women from a human
rights perspective,
and to ensure the
judiciary’s
effectiveness in the
prosecution of acts
of violence against
women;
· the provision of
training to law
enforcement
officials and
judicial and medical
personnel on the
investigation and
prosecution of cases
of sexual violence
including on the use
of medical and
forensic evidence
and national and
international legal
and human rights
standards; women
police officers and
women members of the
judiciary should be
recruited and
trained in
sufficient numbers
to counter a culture
of discrimination
and to allow
specialization on
cases of violence
against women;
· investigating past
and future
allegations of rape
by its own forces,
and ensuring
cooperation with
investigations and
compliance with all
investigations
whether by national
or international
courts or
commissions into
allegations of human
rights violations by
members of its
security forces and
militia;
· transferring the
jurisdiction for
human rights
violations committed
by military
personnel on active
duty, particularly
against civilians,
to ordinary civilian
courts;
· signing and
ratifying the Rome
Statute of the
International
Criminal Court
immediately without
an Article 124
declaration and
enact effective
implementing
legislation, as
spelled out in
Amnesty
International's
Checklist for
Effective
Implementation
(AI Index: IOR
40/11/2000, 1 August
2000);
· ratifying and
fully implementing
the Protocol to the
African Charter on
Human and Peoples'
Rights on the Rights
of Women in Africa,
the African Union
Convention on
Preventing and
Combating
Corruption, and the
Optional Protocol to
the Convention on
the Elimination of
All Forms of
Discrimination
Against Women;
· establishing
communication and
cooperation between
civil society
organizations and
law enforcement
agencies at the
local level in the
interests of
protecting survivors
of violence and
increasing women's
trust in the
criminal justice
system.
Ending general
discrimination
against women and
PLWHA
The Government of
Rwanda must give
greater priority and
resources to
developing,
supporting and
promoting education
programs for the
public and community
leaders on the
importance of not
stigmatising women
survivors of
violence or women
living with HIV/AIDS
and allowing them to
speak openly about
their situation and
to seek help. These
programs should
include a particular
focus on male
partners and family
members of women
living with
HIV/AIDS. Such
programs should be
carried out in
consultation with
international
organizations,
national
non-governmental
organizations,
associations of
PLWHA, religious
communities and
independent media.
Journalists and
civil society must
be allowed to
communicate freely
with the public.
The Government must
continue to take a
strong public stance
on gender-based
violence by sending
a clear message that
it is neither
inevitable nor
acceptable and that
those responsible
will be brought to
justice. To this
end, the Government
should compile
statistics, conduct
research on violence
against women and
permit other
organizations
working in Rwanda to
document and
publicize the
results of their
research.
The Government must
ensure that material
is available
informing people of
their rights, what
health care is
available and how to
proceed if they or
members of their
families are
survivors of sexual
violence.
The Government must
ensure that legal
reforms that support
women’s rights are
not undermined by
customary law and
practice.
XIII.2. TO THE
INTERNATIONAL
COMMUNITY
The international
community should
continue providing
funding and
technical support to
measures that
contribute to the
protection and
fulfilment of the
rights to health,
food and education
of PLWHA and their
families, including
by supporting
programs that
provide assistance
to children who are
orphaned by HIV/AIDS
or who are at risk
of being orphaned.
Amnesty
International urges
the international
community to ensure
that all decisions
and policies
concerning the
provision of health
care are consistent
with Rwanda’s
obligations under
the International
Covenant on
Economic, Social and
Cultural Rights, to
which Rwanda is a
state party. The
international
community should
provide assistance
to ensure that the
Government of Rwanda
is able to provide
health care without
discrimination of
any kind.
The international
community must
assist the
government of Rwanda
in establishing a
systematic and
comprehensive
program of care for
survivors of sexual
violence.
The international
community should
devise support and
promote education
programs targeting
the public and
community leaders on
the importance of
not stigmatising
women survivors of
violence and
allowing them to
speak out and seek
help. The
international
community should
support independent
media, in particular
radio, as a vehicle
for human rights
awareness.
The international
community should
urge and support the
Government of Rwanda
in bringing
perpetrators of
sexual violence to
justice through
ordinary
jurisdictions, and
strongly encourage
the Government to
press forward with
the work of
gacaca
jurisdictions
without delay and
with the necessary
financial and
political
commitment.
The international
community should
assist and support
the Government of
Rwanda in
establishing a
compensation fund
for victims of human
rights abuses during
the genocide and
war.
********
(1)
The Rwandan
Patriotic Army
invaded Rwanda in
1990. Following the
invasion, local
authorities, with
government
complicity, launched
17 large-scale
attacks against
Tutsi in 12
communities, killing
an estimated 2,000
individuals
according to a
Foundation for Human
Rights Initiative
investigation.
(2)
Medical
professionals, local
leaders and social
workers attest to a
dramatic rise in
rape in the years
since the 1994
conflict, including
of very young girls,
and speculate that
it is one of the
outcomes of a
traumatized,
brutalized and
increasingly
fragmented society.
(3)
AVEGA «AGAHOZO»,
website,
http://www.avega.org.rw/englishhome.htm,
and interviews with
AVEGA «AGAHOZO»
staff, January 2004.
(4)
AVEGA «AGAHOZO»,
"Etude sur les
violences faites aux
femmes au Rwanda",
Kigali,
December1999, p.24.
(5)
Interviews with
staff of
AVEGA-AGAHOZO,
January 2004.
(6)
Government of Rwanda
HIV/AIDS Treatment
and Care Plan
2003-2007, Developed
with the William J.
Clinton Foundation,
p. 12.
(7)
http://www.cnls.gov.rw/cadre.htm.
The figure they use
for poverty level is
not specified. The
UNDP Human
Development Index
for 2003 records
86.4% of Rwandese
living on less than
$2 per day from
1990-2001.
(8)
2002 FAO State of
Food Insecurity,
http://www.fao.org/docrep/005/y7352e/y7352e07.htm#t.
(9)
In Rwanda, as
throughout much of
Africa, radio is the
electronic
communications
medium with the
highest level of
penetration.
Television and print
media reach only a
small percentage of
the population.
(10)
In some instances,
male relatives were
forced to rape
women, thus
traumatizing both
the woman and the
man.
(11)
AVEGA «AGAHOZO»,
Etude sur les
violences faites aux
femmes au Rwanda,
Kigali, December
1999, p. 24.
(12)
A fistula occurs
when the wall
between the vagina
and the bladder or
bowel is ruptured
and women lose
control of the
bladder or bowel
functions. They
become isolated as a
result of their
incontinence. The
problem can be
resolved by surgery.
(13)
Cadre Stratégique de
la lutte contre le
VIH/SIDA 2002-2006,
produced by the
Commission National
de Lutte contre le
SIDA (CNLS), p. 37.
(14)
This is also known
as "transactional
sex", indicating
that sex is being
traded for financial
or other
considerations.
Women "consent"
because they see no
alternative way of
surviving.
(15)
Prosecutor v.
Dragoljub Kunarac,
Radomir Kovac and
Zoran Vukovic (Foca
case), Appeals
Chamber Judgment,
June 12, 2002,
IT-96-23 and
IT-96-23/1, paras.
127-133.
(16)
United Nations,
International
Criminal Tribunal
for Rwanda, Chamber
1, Judge Laïty Kama,
Presiding, Decision
of 2 September 1998,
The Prosecutor
versus Jean-Paul
Akayesu, Case No.
ICTR-96-4-T.
(17)
Convention on the
Elimination of All
Forms of
Discrimination
against Women (CEDAW),
art. 5(a).
(18)
Convention on the
Rights of the Child,
G.A. res. 44/25,
U.N. Doc. A/44/49
(1989), entered into
force Sept. 2, 1990,
article 34.
(19)
Convention on the
Rights of the Child,
article 39.
(20)
Avocats Sans
Frontières, Titre
Premier de la Loi
Organique et de ses
disposition pénales,
Daniel de Beer:
Brussels, 1996.
(21)
Gacaca is a
community-based form
of justice
traditionally used
to try lesser crimes
in Rwanda. In 2001,
the Government of
Rwanda introduced a
system, based on
gacaca, to try the
tens of thousands of
detainees held for
suspected
participation in the
genocide who could
otherwise not be
tried in a timely
fashion by the
ordinary
jurisdictions.
(22)
Penal Reform
International (PRI),
"Research on the
Gacaca-PRI, Report
V", September 2003,
p. 13.
(23)
UNAIDS, "Paying for
HIV/AIDS Services:
Lessons from
National Health
Accounts and
community-based
health insurance in
Rwanda, 1988-1999",
September 2001, p.
7.
(24)
Commission on
Macroeconomics and
Health.
Macroeconomics and
Health: Investing in
Health for Economic
Development, Geneva,
WHO, 2001, p.61.
(25)
UNAIDS/WHO
Epidemiological Fact
Sheet on HIV/AIDS
and Sexually
Transmitted
Diseases, Rwanda,
2002 Update.
(26)
Cadre Stratégique de
la lutte contre le
VIH/SIDA 2002-2006,
produced by the
Commission National
de Lutte contre le
SIDA (CNLS), p. 9.
(27)
Treatment and
Research AIDS Center
(TRAC), "HIV
Sentinel
Surveillance Among
Pregnant Women
Attending Antenatal
Clinics", Republic
of Rwanda Ministry
of Health/CDC,
Rwanda 2002, p. 15.
(28)
The World Bank
notes, for instance,
"The project is
likely to be
sustained to the
extent that there is
strong ownership,
participation and
commitment.
Likewise, a major
effort is being made
to strengthen
implementation
capacities at all
levels". From The
World Bank, "Project
Appraisal Document
on a Proposed Grant
in the Amount of SDR
22.2 Million (US
$30.5 Million
Equivalent) to the
Republic of Rwanda
for a Multi-Sectoral
HIV/AIDS Project",
March 11, 2003,
Report No. 24992-RW,
p. 36.
(29)
ARV drugs, taken
within 48 or 72
hours of rape, and
taken for a month
are believed to
reduce the chances
of the woman
becoming infected
with HIV.
(30)
The World Bank,
"Project Appraisal
Document on a
Proposed Grant in
the Amount of SDR
22.2 Million (US
$30.5 Million
Equivalent) to the
Republic of Rwanda
for a Multi-Sectoral
HIV/AIDS Project",
March 11, 2003,
Report No. 24992-RW.
(31)
Footnote: Guidelines
on HIV and human
rights
(32)
"Rwanda: Sexual
Activity among
Street Children in
Kigali", U.N.
Integrated Regional
Information Network,
March 13, 2002.
|
AI Index:
AFR
47/007/2004 |
|
6
April
2004 |
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